Syringomyelia
Dr Streebig,
My name is Billie
F, I am 54 years old. In 1986 I began dragging my left leg
and after a period of time I went to a Neurologist, who ordered an MRI.
The finding was I have Syringomyelia. Because this is very rare not much research
has been done and the only thing that had been tried would probably leave me paralyzed 90
% chance and that was not a consideration. I saw numerous specialists, and they all said
same thing; I would be in a wheelchair in 2 years. Usually
Syringomyelia affects the arms and hands, but mine is my left leg.
In 1987, I
started going to Dr. Ha an acupuncturist who told me he could not cure me but would
keep me walking as long as he could. For 12 years I have gone faithfully twice
a week, once a week, and then once every other week, and had to pay for it out of my
pocket because he is not an M. D. As far as I am concerned he knows more
than most doctors and specialists insurance companies pay for without a second thought.
Through the
years I have seen many specialists, because the insurance company says I had to see
a specialist to confirm my needs. To me this has been money wasted. When
I needed a wheelchair I had to have a specialist say it was a medical necessity.
When I needed a leg brace because the new doctor said it would help me walk,
I had to see a specialist. This doctor recommended I have physical
therapy so I went and the first treatment (which was my last ) the
therapist hurt my knee and it still hurts.
A friend of mine told me about Dr. Tong, and wanted me to go see him because, he
prevented her through his
NBE treatments from having her leg amputated. She had seen many doctors and they
told her it was due to her diabetes and the leg had to be removed. She had other
problems also, but today she has no brace, no crutches, and she has no pain. The most
important thing, Dr. Tong has her diabetes under control.
Do you
realize how frustrating it is not to be able to do simple things you have done all your
life because you know the pain will be so much you cannot stand it? I am able to
walk very painfully around my house with a cane, but when we go out I have to go in a
wheelchair. I have had to give up so much because, I need someone's help to do
basic simple things. My mind says yes, but my body says NO ! The specialists
I saw many years ago, and the ones I have seen recently ask me how I'm
still walking and when I tell them acupuncture they just poo poo the idea because they
were not taught this in medical school.
When
it got to be too hard on me driving to Santa Monica where Dr. Ha has his office, I
changed to an acupuncturist who was also an M D that the insurance company would pay
for, and all he wanted to do was give me pills and that is not the answer. I decided
to go back to Dr. Ha. so my husband took half days off to drive me there, but his work
said no more, so I had to stop going.
In 1993, I applied for disability because I just could not work any longer.
It was awarded to me the first time my
attorney sent in the information about me and I didn't have to go to court one time.
My attorney said that never happens, you usually have to go in for one evaluation.
The judge knew what Syringomyelia was and knew there was no hope and just
gave it to me.
My friend kept after me to make an appointment with Dr. Tong, so I called and
went in. He explained the NBE treatments and what all he does and I knew this is my
last hope so I went ahead and had the treatment. I won't lie, it (the shots ) hurt,
I screamed, cussed, and cried, but after I got home I knew it helped, because
the pain was less. On Thursday, I had my second treatment , and
the shots didn't hurt as much, I did not need my leg brace and the pain was gone.
We
went shopping over the week-end, and for the first time in years I WALKED ! !!
I know the acupuncture works,
I'm still walking, but with straight acupuncture the pain was never really gone all
the way and I know if I can continue to see Dr. Tong this will be the answer
to my prayers.
I hope you will allow Dr Tong
to continue treating me by insurance coverage for however long he says I need to see
him. If 3 treatments has allowed me to take off the brace, get out of the wheelchair
and walk up steps how can you say I can't have any more treatments. Please do not do
that to me. Give me a chance to be normal again.
My wish is for Western
medicine to acknowledge that Eastern medicine has worked for thousands of years in
their
country, why not give it a try.
Thank you so much for reading my
letter, and I hope you believe me that this is my last chance of leading a normal
life and I plead with you to give me a chance.
Sincerely,
Billie Jean F.
Billie was referred to us by one of our patients, Daisy, a 70 year
old lady who had suffered from a dropped foot syndrome and diabetes. Daisy was completely
unable to flex her right foot. She dragged her foot walking despite her use of a leg
brace and a cane. Her blood sugar was 180-200 or more on two different diabetic
pills. The conclusion from exhaustive conventional treatment by 9 different specialists
was that her right leg needed to be amputated, as did the left, eventually.
NBE treatments completely cured Daisy's condition. She has been
walking normally without any assistance for the past year and a half. Her blood sugar also
has been normal (between 100 to 120) without the use of any drugs or any further NBE
treatments. It occasionally goes up to 140 or 150 when she fails to watch her diet.
Daisy needs to return for more NBE treatments and herbal/nutritional supplements. However,
she cannot afford them due to reimbursement problems with Medicare.
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